The Project
Create a 10 minute award-winning documentary about Daniel Barvin, his family experience with ALS and FTD and his mission to educate the world about genetic testing. A heroic story of bravery and patient advocacy, that will help start a movement.
Why This Matters, Why Now?
- 500,000 people in the US either carry or are at risk of carrying a causative mutation for ALS/FTD risk of developing ALS, 30,000 people have it right now
- “No Ordinary Campaign” a feature documentary about Brian Wallach, has achieved peak success for a documentary, was at SXSW, premiered on Amazon prime and was produced in part by Amazon MGM Studios.
- The Director of “No Ordinary Campaign” Chris Burke, is taking on the role as an advisor for our film “Come Back When You’re Sick”
- Eyes are on Hemsworth, The time is ripe to put Genetic Testing back in
the public spotlight. - Daniel worked alongside Brian Wallach at I AM ALS, He had to form End the Legacy because no other ALS organization would give the Genetic ALS/FTD community a seat at the table.
Personnel Bios
Founder and CEO: Cameron Kit
Cameron is a filmmaker and entrepreneur with over 13 years of experience in film and storytelling. She has directed over 30 films, including the feature documentary “African Woman’s Voice.” She ran the animation studio Whiteboard Geeks for 10 years, growing the company from 3 to 30 employees and bringing revenue from $400,000 to over $3,000,000. She is passionate about science fiction and how future technology will shape our world.
Cameron Kit, Co–Director and Producer
Cameron is a feminist filmmaker, producer and radio host based in Brookl\n, NY. She is founder of YOYOS LLC, a documentary storytelling company.
She has directed 30 short films, including Chlorine Zhich has been featured in 9 festivals across the US and Canada and earned finalist selections in the Montreal Indie Film Fest and NeZ York Cinematography Awards. She has shot and produced
and directed 2 documentary shorts about violence against women; Rufilin (2009) and Start By Believing (2018).
She lived in Richmond, VA for 11 years, working as the head of production at WRIR 97.3 FM and host of multiple radio shows (both music and news/talk). After graduating from Virginia CommonZealth Universit\ in 2012 Zith a BFA in Sculpture and Extended Media + a minor in Kinetic Imaging from VCUArts, she turned her passion for video performance art + editing into a career in filmmaking.
Her goal is to bring this story to as many people as possible to reach the film‘s goal of supporting women’s voices.
